Boy born with rare 'Butterfly disease' that leaves him with no skin refuses surgery because he's scared of dying on the operating table
Meet the 'butterfly' boy whose skin tears from the slightest touch – Splitting after playing with toys, eating and even being picked up by his parents - Storytrender
Dean Clifford – Engage Health
Parents Of Oklahoma Baby Born With Butterfly-Thin Skin Hope For Cure
Jonathan Pitre Died From a Skin Disease Called Epidermolysis Bullosa
My health experience: Living with butterfly skin
The brave boy living with rare skin disease epidermolysis bullosa | This Morning
Butterfly Children' Disease Causes This Boy's Skin to Look Burned and Blistered | Health.com
The Boy with the Butterfly Skin | The Doctors TV Show
Epidermolysis bullosa - Wikipedia
Butterfly Child' With Rare Skin Disease Dead at 17 | PEOPLE.com
Wellesley residents support fund-raiser for 'Butterfly Children' - The Boston Globe
Teen dubbed 'butterfly boy' dies of rare skin disease; Ottawa Senators mourn his death | Fox News
This 38-year-old man with butterfly skin became weightlifting marvel | Health News | Zee News
Teen with terminal 'butterfly skin' disease is in constant agony | Daily Mail Online
There are days she's screaming so much we're all in tears' - parents of 'butterfly skin' children appeal to Dáil for help
A little girl's butterfly skin and 'the worst disease you've never heard of' - Chicago Tribune
18-Year-Old With 'Butterfly Skin' Wants People to See Past His Excruciating Skin Disorder | Inside Edition
Wisconsin teen diagnosed with cancer while battling rare 'butterfly skin' disease: 'He is resilient' | Fox News
His skin is as fragile as the wings of a butterfly': Mom's heartbreaking account of son's rare skin condition – Love What Matters
Butterfly Skin Disease (Epidermolysis Bullosa): A Rare Disorder
/cdn.vox-cdn.com/uploads/chorus_asset/file/18667378/1846741.jpg "Family tells Washington Post how faith in God's plan helps them battle genetic disease - Deseret News")
Family tells Washington Post how faith in God's plan helps them battle genetic disease - Deseret News
Butterfly Skin by ANaya Turner
Lauren Rogers: Girl with rare 'butterfly skin' condition dies aged 19 - Mirror Online
Wichita man with rare 'butterfly disease' dies at 21, mother say - KAKE
